If you have Neurofibromatosis (NF), know someone who does, or are looking for information regarding NF… you have come to the right place! You are not alone. Facing a new diagnosis of NF, living with NF, or loving someone affected with this disorder, creates a multitude of feelings, concerns, and questions that only another with [...]
April 24, 2013
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2013 Doodle 4 NF: May 9th – May 20
Doodle 4 NF (http://www.doodle4nf.org/) is an annual fundraiser for the Neurofibromatosis Network. Autographed Celebrity Doodles are collected year-round and offered for sale during a 10-day auction each May. The 2013 auction begins on Thursday, May 9th and ends on Sunday, May 19th. If a Celebrity Doodler submits two Doodles, the second is posted on day 2 [...]
February 4, 2013
Mariners Tickets 2013: Tuesday, June 25th 7PM Game
The Seattle Mariners have donated 75 tickets to the NF community!! They have generously done so for about the last 15 years!!!! The ticket instructions are as follows….. If you’d like Mariner tickets you can request up to 4. Someone in your group going to the game must have NF. If the tickets are asked for [...]
February 4, 2013
Ask the Doc Medical Symposium
Our Annual Ask the Doc Medical Symposium has been delayed. We are working to bring it to you in the Summer or Fall. You’ll earn about the latest NF research and network with others in the NF community. The price is complementary and no RSVP is required, but you may want to come early to [...]
January 30, 2013
2013 5K Walk /Run: Take a Walk and Make a Difference
Please Join Us! When: Sunday, June 9th Where: King County’s Marymoor Park in Redmond, WA Schedule of Events 7:30am Registration 9:00am Walk/Run 10:15am Kids Dash 10:30am Awards Ceremony 11:00am BBQ Cost of Registration *5K Adults (Suggested Entry Donation) = $20 *Kids Ages 10-18 = $5 Kids under 10 = FREE *Registration is free with [...]
January 14, 2013
NF NETWORK WEBINAR! “NF1 Neurosurgery” – January 23rd
Join us on January 23rd for an all new webinar ”NF1 Neurosurgery,” presented by Dr. Allan Belzberg, who is part of the Johns Hopkins Comprehenzive Neurofibromatosis Center (JHCNC). Pacific Time – 5 p.m. Mountain Time -6 p.m. Central Time – 7 p.m. Eastern Time – 8 p.m. REGISTER NOW After registering, you will receive a confirmation email containing [...]
April 12, 2012
Tim Tebow takes lucky date to the Cartoon Network Hall of Game Awards
Tim Tebow is no stranger to charity and making a difference in children’s lives, but on February 18th he made a difference to one lucky little girl, Presli Collins, when he took her to the Cartoon Network Hall of Game Awards. Presli was diagnosed with Neurofibromatosis-1, or NF1, in 2008 and has undergone brain surgery.
Beauty Mark Nation
Doodle Day USA
Run4NF
March 3, 2011
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