February 10, 2014


After a full year of YOUR support and writing Congress to request funding for Neurofibromatosis research, the President has signed into law $15 million for Neurofibromatosis Research.  On January 17th, President Obama signed the Fiscal Year 2014 Omnibus Appropriations bill that provides funding for agencies and programs across the federal government until September 30, 2014, the end of the current fiscal year.  Critically important to the Neurofibromatosis community are the Department of Defense (DoD) Neurofibromatosis Research Program, and the National Institutes of Health (NIH) – which are set to receive funding.
The legislation provides $15 million for the DoD Neurofibromatosis Research Program, whose vision is to decrease the clinical impact of Neurofibromatosis by promoting research directed towards the understanding, diagnosis, and treatment of Neurofibromatosis.
  You did it!
While this past year has proven to be very difficult, we are grateful for your dedicated and tireless efforts in reaching out to your Members of Congress.   Without your help this funding for NF Research would not be possible. 

We will be contacting you soon for your help with the FY2015 request!

Check out the all new 5th edition of The Network Edge!

The Network Edge brings you quarterly updates on the latest neurofibromatosis (NF) research and clinical trial advances from recent scientific publications.  The Network Edge is organized into ‘bite sized’ pieces by NF topic area, so you can focus in on the information that is of most interest for you.


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