About Us

Washington State Neurofibromatosis Families is a network of committed volunteers partnered together for one purpose only… to support families and individuals who live with neurofibromatosis (NF) in their lives. We are a not-for-profit organization of volunteers, registered under a 501(c)3 ordinance, who provide NF resources, education, support, NF awareness, and information that contributes to living well with NF. Along with the patient and family assistance we provide through education and referrals, we at WSNF are committed to continuing a strong advocacy for NF research. As part of the NF Coalition, we play a key role in a National lobbying effort that provides funds for the best scientific research on the cause and treatment of NF.

Knowledge empowers and with knowledge there is hope! If we may help in any way, please let us know.

(425) 672-9610 or or (800) 942-6825