May 6, 2014

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Let’s make some NOISE! Raise Awareness this May for NF! How can you make a difference during May, Neurofibromatosis Awareness Month? Get tips by browsing the “NF Awareness Toolkit”.  Whether you are a person living with NF, a spouse, a partner, a child, a parent, a grandchild, a friend or a loved one, we hope you […]

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March 1, 2014

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2014 Doodle 4 NF: May 8th – May 18

Doodle 4 NF (http://www.doodle4nf.org/) is an annual fundraiser for the Neurofibromatosis Network. Autographed Celebrity Doodles are collected year-round and offered for sale during a 10-day auction each May. The 2013 auction begins on Thursday, May 8th and ends on Sunday, May 18th. If a Celebrity Doodler submits two Doodles, the second is posted on day 2 […]

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February 10, 2014

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NEUROFIBROMATOSIS RESEARCH PROGRAM RECEIVES FUNDING

After a full year of YOUR support and writing Congress to request funding for Neurofibromatosis research, the President has signed into law $15 million for Neurofibromatosis Research.  On January 17th, President Obama signed the Fiscal Year 2014 Omnibus Appropriations bill that provides funding for agencies and programs across the federal government until September 30, 2014, the […]

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February 6, 2014

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We Need Your Help!

Dear NF Friends,   If you or someone you care about has to deal with large numbers of NF skin tumors (neurofibromas), here’s a chance for you to help make treatment more available. Dr. Hubert Weinberg, a New York plastic surgeon, pioneered a technique (electro-dessication) for mass removal of these tumors. (Watch Dr. Weinberg’s video).  Many […]

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June 11, 2013

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Thank you to all 2013 Walk/Run Participants!

What a great day we had at the 2013 NF Walk/Run! Thank you to everyone who participated and volunteered… you all helped make the event unforgettable and most importantly, you helped raise funds for a great cause: helping those living with NF in their lives.

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