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25th Annual Great Steps4NF Walk – Sunday, June 26, 2016

March 1, 2016

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25th Annual Great Steps4NF Walk Marymoor Park, 6046 West Lake Sammamish Pkwy NE, Redmond, WA 98052 Velodrome Pavilion Sunday, June 26, 2016, 8:00 a.m. Cost: $25 Adults, $12 Kids (4-10), $6 Kids (3 & Under) or Raise $100 and get FREE registration FREE event t-shirt w/ every registration Great Steps4NF Walks take place in communities nationwide.  These inspiring events create strong […]

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NF1 Ask the Doctor — JULY 19TH! In conjunction with the RASopathies Network Symposium

April 8, 2015

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Join the NF Network and Washington State NF for an “NF1 Ask the Doctors” Download the brochure This is a great opportunity to ask your individual questions of someone who really knows and understands NF. Dr. Bruce Korf is a leader in NF Clinical concerns as well as NF Research. WHEN: Sunday, July 19, 2015 […]

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May 6, 2014

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Let’s make some NOISE! Raise Awareness this May for NF! How can you make a difference during May, Neurofibromatosis Awareness Month? Get tips by browsing the “NF Awareness Toolkit”.  Whether you are a person living with NF, a spouse, a partner, a child, a parent, a grandchild, a friend or a loved one, we hope you […]

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2014 Doodle 4 NF: May 8th – May 18

March 1, 2014

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Doodle 4 NF (http://www.doodle4nf.org/) is an annual fundraiser for the Neurofibromatosis Network. Autographed Celebrity Doodles are collected year-round and offered for sale during a 10-day auction each May. The 2013 auction begins on Thursday, May 8th and ends on Sunday, May 18th. If a Celebrity Doodler submits two Doodles, the second is posted on day 2 […]

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Tim Tebow takes lucky date to the Cartoon Network Hall of Game Awards

April 12, 2012

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Tim Tebow is no stranger to charity and making a difference in children’s lives, but on February 18th he made a difference to one lucky little girl, Presli Collins, when he took her to the Cartoon Network Hall of Game Awards. Presli was diagnosed with Neurofibromatosis-1, or NF1, in 2008 and has undergone brain surgery.

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